Frustration over lack of provision in new support service
A Manx man who lives with M.E. has highlighted the plight of children facing the condition, as a new service gets underway on the Isle of Man.
Thomase Cleator was diagnosed when he was 12 years old and says the effects of the condition had a huge impact on his education.
Myalgic encephalomyelitis, or chronic fatigue syndrome, is a post-viral condition which can cause extreme tiredness, and people living with it often still feel tired after rest or sleep.
GP referrals for the new on-Island service are now open, however there's currently no dedicated provision to support children.
Thomase, a sheep farmer and advocate for ME Support IoM, says that's a mistake:
The Department of Health and Social Care has previously confirmed it will submit a separate business case to cater for patients under the age of 18.
Meanwhile, Manx Care has told Manx Radio it's 'waiting for feedback from the DHSC around the progression of a business case for a children’s service, and confirmation as to whether the DHSC will include this in the Manx Care Mandate for 22/23.'
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